Health (Assisted Human Reproduction) Act 2024

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Establishment of Register of Genetic Diseases

49. (1) The AHRRA shall, as soon as is practicable after the commencement of this section, establish and maintain a register to be known as the Register of Genetic Diseases.

(2) The Register of Genetic Diseases shall be in the form of an electronic database published on the AHRRA’s website.

(3) The AHRRA shall, as soon as is practicable after the commencement of this section and from time to time thereafter, enter in the Register of Genetic Diseases the name of each disease which the AHRRA is satisfied, after having regard to current scientific and medical evidence, is a genetic disease.